The Curious Rise in Disability: How Changing Language Alters the Nature of Reality
My son is blind, immobile, nonverbal, and hearing-impaired, with multiple brain abnormalities and complex orofacial birth defects. Is he disabled? It depends on whom you ask.
According to Pew Research, thirteen percent of all Americans are disabled. However, the CDC considers more than twenty-five percent of all Americans as disabled, including seventeen percent of children. In contrast, the National Survey of Child Health considers just over four percent of American children to be disabled. These statistics represent alternate realities.
What is the reason for this wide disparity? Some definitions of disability are limited to activities of daily living, or ADLs, such as eating, walking, bathing, and toileting. Others are broader, including behavioral, mental health, and sensory impairments. While disabilities have increased for all Americans, children, in particular, have experienced a huge rise in disability. An NIH study uses the capacious “developmental disabilities” category for its analysis, incorporating recent rises in ADHD, autism, and learning disabilities, making up a majority of new inclusions. Under this definition, more than half of those children considered disabled have ADHD, with blindness by comparison only contributing to 0.16 percent of the total. More broadly still, one researcher defines disability in children as “activity limitations” including “anything that the parent identifies that their child isn’t able to do in the same way other children are able to do.” Perhaps unsurprisingly, this definition resulted in a twenty-eight percent relative increase in childhood disability within well-off households relative to those in poverty. This definitional morass has significant implications for politicians, educators, and parents, as state resources are allocated using widely disparate disability markers.
Changing definitions of disability create policy headaches and alter our perception of reality. By broadening the definition of disability, the state sets up a self-fulfilling prophecy. Driving the state’s changing standards of language is both political self-protection and political reward. Lumping complex social factors under one label is the state’s sleight of hand. By using such a broad understanding of disability, and therefore limiting conversation about other social, environmental, or economic factors, the state can both absolve itself of needing to provide real policy solutions and proclaim itself the protector of a victimized class.